Monday, October 30, 2006

Menopause

The play....not the real thing!! My sister and two friends and I went to see Menopause at the little Grove theater in Upland. It was great!! I haven't seen my sister laugh so much in I don't know how long. I could sure tell who has gone thru or is going thru the things they were talking about because they almost blew a gasket at some of the songs. Two rows in front of us there was a man and wife (I'm assuming) and it was almost as funny watching him laugh and watching his wife look at him with that sideways eyebrow up look. All you women know that look!
But the actresses were great, the words to the songs they sang were hilarious, all in all a very fun time.

My friends and I ate at Antonio's first. Yummy food. It's that one on the corner of Vineyard and Foothill. Same parking lot as Bobby Baja's. I will be going back there again. I would say better than Macaroni Grill food wise and definitely better ambiance. Quiet, you can actually hear.

Anyway, that's all I did this weekend. Not much going on this week, the normal appts. and such.
So I guess that's all!
Yes Cambria, I love the comments! And if I have my way we will be at the party Saturday!

Tuesday, October 24, 2006

Kelly and the doc

Things turned out well today for Kelly so far. They said by seeing the place in his chest that hurts, it's skeletal? I put a question mark because what does that mean? But at least it isn't his heart. They did an EKG while he was there and did find a slight anomaly. The doctor said normally with it being so small they would do nothing, but with his fathers history of heart disease they are going to do a chest x-ray, a stress echocardiogram and an upper GI test for his heart burn. It has been really bad for years. He takes protonix or nexium whichever our insurance decides to pay for at the time but still has some problems with it. When he told the doctor how much coffee he drank, she about flipped and told him to stop it! At least the upper GI is one where you drink crud then they do an xray or a CT or something. They wanted to do a down the throat tube thing a long time ago, but Kelly was having none of that!
So it looks like things are all ok but he has to start getting in shape. Number one fan, are you out there? Could you come and kick Kelly's tush for me?

As for me, I went to see Marie Antoinette today. I really liked the movie, but the ending. It was very anti climactic. I won't tell you what it is in case you go see it. My cousins Merle and Donna went also. We were all saying we'd never have made it in those times with baths once a month or so, and all the clothes they wore and the hair do's. Oh my gosh. I can't get ready in time now, I'd have never made it then. Of course she had 25 people helping her every day. How annoying!

But looking at Versi sure made me think about my trip to France to see my wonderful friend Joycie. It was so beautiful there and Joyce made it so fun since she already knew where everything was. I wish someone lived in Italy, I want to go there too. Anyone up for moving to Italy or France again, or hmmmm, anywhere exotic? If you do let me know and I'll come visit!

Tomorrow is the cousin lunch, so I've got to try to go to sleep early so I can get my tush out of bed on time. Wish me luck!

Monday, October 23, 2006

Me and my big mouth

So, boring eh? Got the bill for the ambulance, they are not going to write it off (though I'll call BCBS again because they said they'd try to get them to write it off) to the tune of almost $500.
It seems they are not a PPO provider. Next time I'm about to die, I'll remember to go online first and find an in network provider. yea right. Blue Cross actually said that there are no PPO providers for ambulance in the state of Calif. So the ambulance wants to make lots of money, not just the pidley $750 my insurance already paid. Crazy.

Then for the first time I went on line to register my for my Shell card so I could pay on line. I have most of my other stuff on line but never did this credit card. Anyway, I get all registered, go on the part to make a payment and low and behold, it is almost $300 more than my statement that came in the mail said. So I looked at new activity and there are three charges in El Monte (you all know how often I go there) all on one day, each larger than the other. The final charge is an even $100.00 So of course I call customer service immediately. They said there was a red flag on my account already, and that she could see that it wasn't my normal pattern of purchases. She sent it to the fraud dept. but then tells me she can't pull it up so I need to fax what I have seen on line. Now wait a minute, she already said she could see it wasn't my normal purchase pattern, so how could she know that if she couldn't pull up those charges?
Then I had to force her to cancel my card...she actually had to go ask someone if she should. When I asked her what was going to happen, she said fraud should get back with me in 7 to 10 working days. I asked her if I would be responsible, and she said, "well usually when a card has been stolen or lost, the person doesn't have to pay. But since you still have your card, I don't know what will happen." As if I gave it to my friends and let them use it? And the fact that they have my number and she didn't want to cancel the card because it was still in my possession?
Yikes. I can already feel a fight coming on. I sure hope not. It would be nice to have things go easily for a change.

Kelly has to see the doc tomorrow. He has been having chest pains for a while now but neglected to tell me. They come and go, but it's making me nervous. When I called the doc today, they set the appt for Nov. then asked what it was for. When I told the receptionist, she was not going to let him wait. Good!!! So Kelly thinks it's stress. I hope so. But whatever it is, I hope they get to the bottom of it quickly and it gets taken care of.

Still no call from USC. I think they don't want me. I guess I'll wait a few more days then call them and see what's up. Hmmmmm. Other than other insurance issues I'm still working on from forever ago, I guess that's all. Only can handle so much at once! Ok, it's enough!

Joycie and Kim, I'll try to stick to boring, I like it better too!

Sunday, October 22, 2006

Sunday

Not much to say. It's been a slow weekend. We've done nothing. I did get some yard work done today, almost got the whole patio area cleaned, and trimmed the plants that grow along the patio. Got to hire someone to trim those trees, they are way too big.

Still waiting for USC to call, when I spoke to the lady on Tuesday, she said she'd call back later that day or the next day. That's how it's been every time I try to talk to them. Makes me very uneasy. But hopefully if you are actually a patient they will respond to you in a more timely manner.

My big yahoo this weekend was I got an attachment for my vacuum cleaner so that I can vacuum under the bed or the couch or wherever. I know I'm weird, but I've wanted that for so long. I can move the couch if I feel ok, but the bed is impossible. So now I can get rid of those dust bunnies hiding in the carpet. Yipee! There is something seriously wrong with me!

I also got a computer disc that has regular games on it, like chess, backgammon....even mahjongg (sp?). Maybe I can learn to play that, it looks way confusing. But now I'll have something else to do when I'm bored at night instead of writing these boring entries :)

k, off to do breathing treatments, pills, inhalers, shots, the vest and maybe eat. Hmmmm,
what to eat... night night.

Tuesday, October 17, 2006

sad, confused and a mess

Ok, so I talked to USC and will be starting the evaluation process for transplant. (they have to verify my insurance will cover the tx and the prescriptions afterwards, before I can go in) Just typing that sentence is making me tear up again. I don't want to be sick. I don't want to have a transplant. I want to run up the street, and go skiing, and dance till I drip with sweat. Is that really so much?

If they say I qualify for a transplant, that they think it's time, what do I do? I know I still have a choice, but I don't feel like I do. I feel like I'm being led down a path that I don't want to take.
I just want to be ok now.

At my last visit with the CF doc's I got the one that feels like it's very close to time that I have a transplant if I'm going to. He tells me I'm very sick. (my words, not his) He tells me with all that he knows about me I will definitely qualify. But he tells me that I have to think about if I really want to live at all costs, because it is at all costs. It is very hard, painful, life altering, a new life long condition and possible death or a life that is worse than what I have now. He barely mentioned the upside as he doesn't seem to see it happen too often, or not for long. This is a doctor that I so respect and like, he's been a CF doc for about 30 years. He just lost a patient that was 29, and he said they started seeing her when she was 6 months old. He and the nurse were so sad. But I digress...

And then again we're back to what keeps going thru my brain. I like my life now. Things are getting harder. I get tired easier. I do less. But I'm fine with that...sometimes not...but ok enough that if it just would stay this way I'd be ok. Will it just stay this way? Do I risk it all? Do I risk hurting those I love or is not risking it risking it? I know I go over and over this, but it all seems so impossible. I don't want to wait too long, like my friend Katie, or Catharine. But I know so many whose transplant didn't work out for one reason or another.

I told someone recently that I have to take my oxygen with me when I go to the gym and she just laughed. You do? I felt sad that she laughed, it truly isn't funny. It's hard and embarrassing. I haven't even gone in probably a year or more because of it. I need to get in shape in case I do or don't have a transplant...if I don't I need to do what I can to be stronger. If I do, it's easier to recover from the surgery if you're stronger going in. I'm so weak it's pathetic.

All this began because of my anger and sadness over another bleed on Saturday night. It was small, but I'm so sick of it. This, after the discussion with my doctor has made me want to just stay in bed till it's over. Let someone else decide. Where the heck is my fairy godmother?

Saturday, October 14, 2006

Rain?

What's the deal? Rain in October? It is supposed to be Santa Ana weather, not rain. But I love it. I love it for two reasons. One I just do. It is so pretty, cleans things up (although I don't know if we got enough for that) and sounds good on the patio roof. Two...I was going to work in the yard today and now I don't' have to!! I don't have to water either. Yahoo!

Kelly and I are having a lazy day. I told him he could be off the hook, since I kept him so busy with my stuff last weekend. But I can't stand to sit any more. So I vacuumed and am now doing some computer stuff. How can anyone sit all day? I don't get it!!

Riet, thanks for posting a comment on my blog. That's so cool you read it! If I had pic's of the wedding I'd send them to you. If she sends me any, I'll send you some. The girl who got married, her family is from Holland. I don't think she'd ever been there though. I have been once, I loved all the tulips at Kukenhof (sp?). It was beautiful.

All the rest of you out there, give me some comments...even if you just say, Carol, your writing is boring :)

Off to find something quiet to do so my hunny can continue on his day of TV! Bye

Monday, October 09, 2006

My weekend

I'm happy to say I had a very very nice weekend. I started it by having dinner with my cousin Darrell, his wife Hannah and their son Andrew and of course Kelly. I haven't seen my cousin for about 15 years I guess and have never met his wife and son. Andrew and I got along great, he's a cool kid. Hannah is so pretty and sweet, I guess she got all that Southern stuff being raised in Oklahoma. The weather was perfect, not to hot, not too cold, and the conversation was fun. They came to the house after for a while and Kelly regaled them with stories of Myth TV. Don't ask. He was very impressed that Hannah knew what he was talking about. When he talks to me my eyes glaze over and he can tell I'm thinking about, oh, dinner or a movie... sorry honey.

Saturday was Helen and Doug's wedding in Long Beach. It was very nice, the priest was great. Helen looked so beautiful, I guess it's a bride thing. Doug was looking very handsome himself.
The reception was in Orange at their friend's house. It was decorated so pretty, it could have been a show on HGTV. It was in the backyard and again the weather was just perfect. We didn't stay till it was dark, but I bet it would have looked wonderful then with all the lights and candles.
Michele, the maid of honor, has been a friend of mine since 3rd grade. She looked very beautiful, not much change since high school. Kelly and I had a great time talking to Michele and Jill and the people sitting at our table. The food was great and you know how I love food! They put little jars or pots of M&M's at each place setting so the next night I gave one to Andrew and it can't be opened! Everyone at our table tried it and it is impossible. I think Helen planned it this way and is laughing knowing no one can get their little gift open!

Sunday Kelly and I went looking at new homes. We found a bunch in Rancho in the foothills I guess. They started at a mere $850,000. It's ridiculous. Yes they were pretty and spacious, but my gosh, who buys those homes? Then we drove around Claremont and found an older home for sale. It was up in Clairavoya (sp?). It was a mere $767,000. But it at least had a beautiful view. I wonder how much fixing up it needs? So needless to say, we'll be staying here for a while, a long while!!!

Then we had dinner with the entire family, or most of the family, at Vinces. Andrew and I had fun flicking straw wrappers at the others. But I think I got him in trouble when he didn't quite know when to stop. Oops! Got to talk more with Darrell and Hannah. Kelly and I wish they lived here. We could move to Dallas if I never wanted to go outdoors during the humid season and what is that 9 out of 12 months? No thanks! After dinner, I needed a ride home as Kelly had left early so they took me, but we went to Starbucks first and it was nice to talk. Got to spend a little time with Vicki there too. Now they are off to the Grand Canyon and then Albuquerque for the Balloon Festival and then home. What a lot of driving! But I'm so glad they came.

Today the fun continued. I had lunch at my favorite place, Red Lobster, with two of my friends Cheryl and Susan. We haven't had lunch in a long time so it was great to catch up. They went to a movie, but I was so tired from the weekend, I came home. Did some errands and some chores then went to sleep. I think soon, I'll go back to sleep!

So that's my fun weekend! Tomorrow is off to the doc...no more fun! Back on the study drug, which while a pain is a good thing. The weather is getting cool and I love that! I might even pull out the Halloween decorations I feel so motivated after this weekend. Who needs stinkin therapy when you can just have fun instead?
(we missed you June) (you too Kofie)

Sunday, October 01, 2006

October 1

Well it's the first of the month and I was going to start my new get fit program. I was supposed to at least go walking today. But I am so tired :( I didn't do much of anything. Figures!

I had a nice time yesterday. I got up early, 8am which for me is non existant, and went to get my hair done. I HAD to get it done and there were no more days as my hair person only works on Saturday. So I went straight from there to the bridal shower. It was really nice, lots of food, perfect weather for an out door garden shower and the bride seemed to be really pleased. There were the usual games and then my favorite, the opening of gifts. She got some great stuff. I hope the car was big enough! It was so funny and cute that they registered for the dog too so they got a new dog bed, dog bowl and two boxes of urine be gone. I got her one of those, had to, it cracked me up when I read that on the list!

Then home and not much else. Today I had all these plans, but my body said nope! The cats kept waking me up last night and this morning so I didn't get enough sleep. That just means my list for tomorrow is even bigger!

So, no one has a tree that they know the name of? I am taking some leaves to Mt. Fuji tomorrow to see if they can tell me what I have. I want my kid to have the coolest leaves.
Guess that's all. Talk to you all later.