Friday, June 30, 2006

Is it winter yet?

Oh my gosh, it is so hot I think I'm going to die! I went shopping today. I made it to all of one store. I couldn't believe how many people were at Victoria Gardens, outside. I guess people are a lot tougher than me!
Nothing much to say except I'm not feeling too great. Haven't for several days now. Using my 02 a lot more and doing more breathing treatments. My blood sugars are off the charts. In the 5 and 400's. Then I finally got it to 250 and for days couldn't get it below that. Then tonite out with Kelly of course I crash. It was at 60. Had some cake. Still felt bad. It was at 40. Had a candy bad and some soda. Two hours later it's at 318. Here we go again.

I figure if I can just make it 7 more days, then I go back on the study drug and hopefully it'll help the infection so I can breathe better and less infection will help me get my sugars back in control. It's so very annoying.

Anyway, I wish it was December and raining and cold. Yep I need to move to Washington!

Tuesday, June 27, 2006

You can call me Mrs. Director

Well, I got the notice that I was voted in as a Director for the United States Association for Cystic Fibrosis Adults, Board of Directors. Now I just need to know what the heck I'm supposed to do!
I did find out that they pay for the CFRI conference, that's cool. If I had known I was going to apply and that they pay for the flight, hotel and conference fee's if you get voted in, I wouldn't have used the last of Kelly's frequent flyer miles. But they are going to pay for the hotel and conference fee's. That will help so much. They pay for spouses also, but the spouses have to work. They have to serve food at the meals, as people with CF can't touch serving utensils, salt and pepper shakers, water pitchers, all for cross infection purposes. He'll also have to help with setting up and tearing down some of the conference stuff. We practiced at Coco's the other day when I made him pepper my food! Hee heee heee. I'll be playing this for all it's worth!

I was helping at Lynn's today, organizing her kitchen. I had fun, yes I know I'm weird. I think I made it much more efficient. I've decided she definately needs kitchen stuff, serving bowls, a new coffee pot, towels. I think everyone should get to have a old house shower every ten years so we can all get new kitchen stuff! That would be a fun tradition. But we'd spend so much on buying stuff for everyone's party that we might as well buy our own. Although it is more fun to buy and receive gifts than to restock your own kitchen!

So now I'm wooped. I'm going to go sit on my keishter and watch tv.

Friday, June 23, 2006

A nice week

Hi all,
Boy I had a really nice week. My friend Joyce from Austin Texas came out this week.
She is always one person that while we don't see each other too often, or even keep up with our emails for that matter, when we get together it is as if we see each other all the time. No awkward pauses, no lack of things to talk about. It's so nice.
I'm sure she had an agenda that I totally messed up! She wanted to help me out, make food to put in the freezer, clean house... But I was feeling good so I drug her all over the place, took her to cousin lunch (and it was a big one this time!!, 18 people.) I got to see my cousin Scott that I haven't seen in 30 years. That's sad. I met his wife and their kids. What nice people. Anyway, I took her to Lynn's house, took her to the mall. I cooked once and we wanted to take her out to eat once and she cooked once. That's about all we managed to get done together. I did make her eat about 100 more times at really cool places like Del Taco and Weinerschnitzel (sp?). Sorry Joyce! The dinner she made was really great. I can't remember the name but I remember how she made it. And Kelly liked it so now I have to cook it! Darn!

While I was sleeping, Joyce was also a very busy girl. She cleaned out shelves in my garage that I had been meaning to clean for ages. She fixed a sprinkler problem we were having (of course requiring that we go to Orchard 25 times) and she cleaned off the entire patio, with water, and spray painted the old ratan chairs and table bottom so they'd match the white wicker. She also recovered the patio chair seats.

But today was a sad day. Joyce had to leave...and she had to leave with 15 stitches in her leg. She was putting the patio back together and the glass table top fell and cut her leg in two places. She comes in and quietly wakes me up....Carol, we need to go to ER.
Yikes! I felt so bad. I could care less about the table, I was so worried about her leg. It didn't bleed too much but was sure deep, about 3/4 inch. They had to put stitches inside then outside. It was interesting to watch, but I'd just as soon not repeat. I haven't talked to her since she got home, but I hope no one bumped her leg on the flight or that hanging it down for so long didn't cause too much pain. Because we all know how Southwest has oh so much room between seats!

I want Joyce to move to California! Maybe some day. Kelly was calling Joyce, Joycie like I do. I don't think my brain can call her Joyce. Kelly thought Joycie was her real name. :) He was even like, she was here all week and I wasn't all wanting her to leave! We've had some guests that by mid week, we're done! Anyway, I so appreciate all she did for me. She was so mad at herself for getting hurt because she wanted to clean the house before I got up and vacum while I was in the shower. Ha, no extra work for you! And I got to be useful for a couple of hours. When I was pushing her in the wheelchair she just shook her head and said now isn't this ironic. Kinda funny once she was ok.

Kelly came home from work after I called him from the hospital. He cleaned up all the glass and told Joyce the bad news is now that the table is broke, we're going to get a new set and all that spray painting was for nothing. What a brat! I was teasing him that he used Joyce to get off of work early. But I was suprised, well not suprised but my heart felt all squishy that he was truly concerned for her and didn't want our house guest to be doing anything while she was hurt. He wanted to help. He kept saying how bad he felt. I kept telling him, and Joyce, it was just an accident. But I felt horrible for Joyce too. It didn't hurt too much she said, I just hope that continues.

Joycie if you're out there I hope you are still ok and that Paul lets you come back!

But we wouldn't want TOO much good news. So I had a nice medium size bleed tonite, just to calm the tone down around here. I'm thinking that I can be all normal....not, says my body. Baugh humbug. We'll see about that.
See Joyce, stubborn it is!

Tomorrow is tea with Michelle, Liz and I don't know who else. Sunday I'm helping my sister with some organizing, which is my thing you know. Need to shop this week, party coming up! And Wednesday a lunch with my friend Shannon. Busy, busy. I like that. Think I'll squeeze in a movie or two also. Hmmmm.
I'll sleep on Thursday!

Good night!

Sunday, June 18, 2006

I'm so excited! Tomorrow my friend Joyce is coming from Texas to visit. I got to see her last year for a few hours but not for 3 years before that. She said I'm not to do anything special for her coming out. So ok...but I did clean house for ya!
I have so much I want to do. We'll see how it goes. If it stays 100* I'm staying in the house the whole time!

Last night my friend Michele, that I"ve know since 3rd grade, her girl friend Jill and their friend Helen whom I used to work with at Mervys years ago, came out to visit. We went to dinner at a little restaurant in Claremont and then hung out at the house. It was so fun talking and hearing about their work and what they do. I sure wish we lived closer to them, it would be nice to see them more often. Helen is getting married in October and her house won an award for historical restoration. They live in Fullerton. Cool.
Michele's business is going strong and "morphing" into other dimensions. She has some really interesting clients. I don't understand it all! But what's new. Jill is a nurse practitioner in gynocology. Such busy people.

Got a call from Lynn today. The housewarming and/or reception is going to be July 1st. I'm going over next weekend to help with some organizing. It's my thing. It's what I like to do!
Her dogs have been sprayed with skunk again. The big dog, this is his 3rd time. He just doesn't understand why the striped animal doesn't want to play. The little dog got it for the first time. Anyone know of a good remedy to get rid of skunk smell?

And that's it. I wanted to work on the patio today, but it's just too darn hot. Is is going to be winter soon?

Wednesday, June 14, 2006

Feeling better

So, I'm feeling better, emotionally and physically. I worked in the yard Monday evening and trimmed a row of overgrown plant in the back yard. No power tools needed, but it was still hard work for me. But I did it! And I went shopping today for 2 hours without any 02. I took it with me, but when I went to turn it on the air pressure all left so I couldn't get any 02. But I did ok.
Crashed once and had to go get a cookie, oh darn, and then back to shopping. I found some nice summer clothes. Tomorrow I'm going to get more!

My point is, I'm gaining some strength. A month ago in the grocery store, the boxes of bananas were on the floor. So I squatted down to get some bananas and with the weight of the 02 on my back, I couldn't get up. How humiliating. I had to grab the counter and try to pull myself up. Today, I was able to squat down, wearing the 02, and then get up without aid of a counter to pull myself up on. I am feeling more comfortable carrying heavy objects for a short distance. I think I can walk further. So I'm getting better..

I ran into one of my ex sister in laws today. She seemed suprised to see me. I was a bit embarrassed as I don't like people whom I haven't seen in a long time to catch me wearing 02. Oh well. She said she was shopping there to relax, but after we talked I think sh jetted out the door. Chicken!

Let's see, what else? Oh, I applied for the USACFA. I found out I can't apply for Catharine's position. I have to be a "director" for a year first. So, ok, I apply for that. Then I find out I need to send an actual resume, not a letter. Shoot, I haven't had a resume for 14 years. I haven't worked in 8 years, my how time flies, and then had my job for 6 years before that. I don't even remember what to put on a resume. Won't it look bad with 8 years of nothing? Plus, I can't really put what my goal is, or my understanding of the job is, as I have no idea! I just figured they'd tell me what to do and I'd do it. I have looked on the website and no where does it say what directors do. Kelly said he'd help me with the resume...hmmmmm

Think that's about it. Joycie is coming on Monday. I'm so excited. I got to see her last summer, but only for a few hours. It's been a lot of years since we spent any real time together. I went to Texas for her 40th birthday, but I was so sick I was no fun what so ever!! So hopefully we'll do some stuff that's fun. Saturday Michele, Jill and Helen are coming out for dinner. I think we'll go out. Where to go? And that my friends is my life. Not too exciting, but not too bad!

And my number one fan isn't an ass for saying "nice to see you" to Ken at the funeral. It's just one of those things. Funerals are hard and your mouth sometimes just says stuff. The people in line before us asked Ken if he'd be at work next week...Peggy was apalled and said are you joking? The man just stammered, oh, I forgot. Where the heck did HE think he was?

So things are good. Hopefully for a long while.

Saturday, June 10, 2006

The funeral

Today was the funeral of Catharine Martinet. It was a Catholic funeral mass. It was nice but I found it to be a bit impersonal. But even with that I couldn't stop crying. It was very interesting that they had Jewish readings for Catharine, as they said she was very proud of her Jewish heritage. They also served Matza as the communion wafer. I was really happy that a Catholic church would make that concession. The priest was also a close friend of the family and it seemed that he struggled with the idea of doing her service. But he did a wonderful job.

At the end of the mass they had Catharine's best friend speak. I learned a lot about Catharine from her and it only made me wish I knew her better. Also two of Catharine's cousins spoke. They seemed more real and sad about losing "little Cathy" as they called her. They spoke of an intelligence and humor that I only was able to see glimpses of. I still can't believe it is real.


After the service I got to speak with her parents, Ken and Peggy. They are both still in shock I think. Her father said they just couldn't believe it. That in just a few house she would have had her transplant. When her mom hugged me...really hugged me and held me, I just sobbed. She said she's been doing the same thing, that she can't believe this has happened. I wish so much that I could make it all better for them.
I saw Ray at the service, he was with her parents. But we didn't see him after. It may have just been too much.

We did see Judge Lance Ito. He performed the wedding service only just over two months prior. He looked very sad. There had to be 300 people there. Catharine was such an inspiration to people she met. There was just something about her that made you want to be in her circle. Apparently many others felt this way too. Outside they had areas set up with food and cool drinks and a few tables scattered around. That seems much easier than having to have all those people at your home when the last thing you really want to do is serve or entertain or clean up after them.

It was a hard day for Kelly and I. I'm so glad he went with me. He had to go to work this morning for an emergency and I wasn't sure if he would make it but he did. I would have been a real mess without him there. I'm so glad he is my rock. I wish Catharine and Ray would have had more time together.

Cystic Fibrosis...such a cruel disease. It takes so many before their time. It breaks up families, drains you of your money, your energy and your hope. At the end of the entire service, the priest ask us to all take a deep breath for Catharine. It was a beautiful sound.

If you'd like to see pictures of Catharine and learn a little about her, go to www.cathymartinet.com

Wednesday, June 07, 2006

6/6/6

It's been a busy day. I've tried to keep myself as busy as possible because if I don't, I find myself crying. So I went to two movies today. First, The Break Up. Not so good. Much too true to life. I grew up hearing and watching fighting, so it was't too fun. Not as much of a comedy as it presents on the previews. But it was nice to have to get up and get ready to do something. Then I went to the grocery store, had dinner with Kelly and went to see the Omen tonite. Darcie and I were going to see it at 7, but it was sold out. We ended up hanging out for a few hours and then went to see it at 9:45. It was really nice to hang out. We went to eat, talked and then to the movie. I couldn't believe the idiots who brought kids. Babies were crying, but at least they weren't old enough to be frightened. Then there were 5 thru 10 year olds there. What kind of parents bring young children to the Omen? I hope they get no sleep for the next two weeks becasue of the kids nightmares. It serves them right. Although I would hope the kids wouldn't have to suffer thru nightmares.

Anyway, now it's after 12 and I have to do all my night time stuff. Hope I don't have nightmares :) My kitties and Kelly will keep the boogyman away.

So during this day of trying not to think, I did anyway. I have decided to try to volunteer for Catharine's position on the Roundtable news paper. It is a news letter for CF adults, by CF adults. I've written a couple of article for it before. She was the corresponding secretary. I don't even know what it envolves, but I will try to do it. I will never be as good as Catharine was no matter what the job is but I'll try. I wrote to the person who founded the paper, a wonderful woman I met a couple of years ago. She said it is a great idea and that I need to send a brief resume to the current president. So I'll do that tomorrow. I hope if I hold the position I will do what ever it is in as good a fashion as I can to help me hold on to the memory ofCatharine. Does that make any sense? Elections are in August at the CFRI conference which I think Kelly and I are going to.

The funeral is Saturday. I just ran out of things to say. I'm sitting here blankly staring at the monitor so I think I'll quit.

Monday, June 05, 2006

catharine

My friend Catharine died today, just after her 45th birthday. I will miss her. She is so smart, kind and giving. She did a lot for CF, was very involved in writing, raising money, and just encouraging people when the needed it. She and her husband only got to live in their own apartment 2 weeks. Her parents must be devastated. I am devastated.

Sunday, June 04, 2006

Catharine

Well, Catharine was intubated tonite. I know that like me, this is one of her greatest fears. I am so praying she will find a donor on time. I guess live donors are going to start testing on Monday.
I am not a praying person, much, but Catharine is just such a sweet person. Not that anyone should die like this, but Catharine especially. I will be going on out Tuesday to see if her mom is there, also to attend the tx support group to hear about the changes they've made to the program. I hope she'll be a little better by then? Off the vent? Please

Saturday, June 03, 2006

not much blogging going on`

It seems like a long time since I've posted. But it's not for a bad reason, it's because nothing is going on. I have been feeling good, running fevers almost every day, but oh well, they are just little any way. I've been doing a little yard work, but today it got so hot, I will be doing very little till, oh, October! I get about an hour at night when it is a bit cooler and that's all I can handle.
I've been doing some house work. Don't need to hire the maid back yet! She did a good job, but I like not paying someone. Oh, I'm cheap!
I'm in the mood to go shopping, in a bad way. But I won't. Or maybe I'll just look...that will always get me in trouble.
So, now I just have to get my tush to the gym, start playing piano, practicing sign and Spanish...and I'll be doing everything I want to. Yikes, I need more hours! I should give up TV, but I love my soaps. Thank goodness for soaps now, there is nothing else on TV. I tivo them and watch them at night when Kelly is sleeping. But then that leaves the weekends. I finally might get to the movies Merle loaned me. I've watched two of them. So far so good. After I get off here, I'm going to watch another one tonite.

So, all is good. Cross your fingers for a long streak of boring posts with nothing bad going on!

Oh, I forgot. Over Memorial weekend, we went to Lynn and Dennys for a bar-b-que. They had the best steak...I ate enough for 3 people. Everyone was laughing at me, because I guess I eat steaks different than everyone else. It was this big ole steak, it had a bone and some fat on one side, so I ate up the middle. Then a little to the left...it had a bit of an "L" in it by the time I was done. I started cracking up when Lynn called it to my attention. I didn't realize...ok, so I'm weird. I used to eat corn on the cob funny to. I'd make a checker pattern by eating every other bite. But I don't do that any more...I'm an adult, humph. My nose is firmly up in the air!
Anyway, we had corn on the cob, garlic bread, a couple salads that I never got to and then watermelon. I ate about 6 servings of that. I am such a cow. Lynn said she hadn't seen me eat like this in a long time...that it was good. I told her yea, and she can buy the new wardrobe!
We are going to try to do this more often. It was fun.

The welcome to her new house and happy getting married party will probably be sometime this month. Toward the end I think. I'll be getting her some out door stuff or some kitchen tea towels and stuff. She needs it! It is so weird to call Denny her husband..it's been so long as her boyfriend. They seem very happy with the new house and with being married. Yahoo! That's the way it should be.

The bad news, my friend Catharine is in the hospital at USC. She is awaiting a lung transplant. She got sick and had to go in and she also has pulmonary hypertension and that is causing huge problmes. I found out today she is in ICU becasue she broke open a bleb. It is a cyst filled with air near the lining of the lung. It pushes air out and can cause a pnuemothorax. For her it didn't but she is in ICU and they are having to keep an eye on her. Today is her 45th birthday. I wish so much there is something I could do. She is getting offers of lobe donors, so I sure hope two of them are a match. She is one of the, if not the, nicest person I know. Her parents are wonderful and supportive and she also just got married a couple of months ago. If you would say a positive word for her to whoever you talk to be it wishing on a star, calling grandma ( or in our family Aunt Mertie) for help. She can use all the help she can get.
Thank you