It's almost one week after surgery and I guess I'm back to normal. No problems like some of the other times, just still a bit of my back hurts around the area they were gluing. On one of my other blogs I said that I wasn't going to do this any more, but that was just a test to see if anyone was paying attention. Now I'm really, really not going to do this any more. Really..
Had breakfast/lunch with a friend today, Miss Cheryl. It was good to get out and about. We went to Target after and she did normal real shopping, I did shower and wedding shopping. Think I can make it to one without getting sick? Shower is Saturday and the wedding is next Saturday. I can do it, I'm sure of it! So far I've missed every party, shower and wedding I've been invited to this summer. Enough already!!
My cousins are coming out to visit next weekend. Not to visit me per se but I get to see them. I'll see Vicki and Doug and their son Darrell and meet his wife Hanna and their son Andrew. Andrew gets to go to Disneyland, that should be fun for him! Anyone have a 9 year old that wants to go to Disneyland with them? It would be cool for Andrew to have some company.
I guess there'll be a family dinner on Sunday. It's been a long time and it will be great to see them!
Hmmmm, what else? Nails and toes tomorrow...it's about time. I think my nails are going to fall off. Then my hair on Saturday before the shower. They are having a garden shower at 2, then change to go out on the town at 6. I think I'll stick to the garden shower. By 6 I'll be sleeping in my soup after getting up at 8 to get my hair done in time. But it's truly necessary, you should see my roots! If you live within a ten mile radius you probably can see my roots!
Ok, I think I'm rambling. I'm waiting for those circus peanuts.. And who told you about rule number 14? I disagree!! But I did take a nap today, was exhausted after getting up early and hanging out for a while. What a wimp I am!
Ok, guess that's all! Love you people!
Thursday, September 28, 2006
Sunday, September 24, 2006
Home again
I'm home. Came home yesterday. I couldn't write on the blog on Thursday because it was down, but Thrusday about 2 am I had a fairly large bleed. I did my good girl thing and called the doctor the next day, actually Thrusday morning and look what it got me. A trip to the hospital, surgery, pain, lots of throwing up (that's a new one) and more pain. But I'm home and all is well. The surgeon said he's so sad that he keeps seeing me, that most people have a few of these over their life time, never anyone having 5 embolizations in 8 months. But he found an artery that was, I forget how he put it, but he used the word aneurysm, so I guess it's good I went. I'm on IV's for a while now but I didn't do any after I got out of the club or today because I need to find out what is making me throw up. Like down to bile...ohhh, pretty pea green. YUCK!! I haven't thrown up since I was a small kid. Well, I did in July after being on the vent but I don't remember so it doesn't count. I don't know if it was the pain meds or the IV's. I've been on both before with no problem, but the pain med, which comes in a patch, looked a lot larger than what I remember having before. Maybe it was too strong. And the IV's, every time on I'm one they ask if I need something for being nauseas, and I say no. Well, maybe my body is tired of it and now it makes me sick? Who knows. But I've had a banana, a carnation instant breakfast and a little bit of potato and everything is staying put. So toned I'll try one IV, then start the next tomorrow. I'm hurting but I don't want to take any pain medic like I had before. Lynn just brought me a lidocain patch so that might help. It is for just the spot that hurts, not the blood stream. This time it's my back instead of my chest.
So that's it for me. I have been sleeping most of the time, I can't stay awake. I guess it's part of the healing process. Up for 30 minutes, asleep for hours. Hope that continues into tonite, so I can sleep all night. I missed a friends wedding today, I'm so bummed. I missed the shower because I was sick. ERRRR. I hope I get to see picutres.
Well, great. I just found out my best friend's brother is in the hospital, just up the street. They don't know if it's his heart, kidney stones, gall bladder....I'm hoping it's kidney stones, that's way easier than the heart. I'm not supposed to go to the hospital becasue of my ex but if my friend's daughter needs me, I'll go any way. I don't really care.
So I guess I'll go shower just in case, yes, it's 6:45 and I haven't showered yet. No smart elick remarks!!!:) Bye
So that's it for me. I have been sleeping most of the time, I can't stay awake. I guess it's part of the healing process. Up for 30 minutes, asleep for hours. Hope that continues into tonite, so I can sleep all night. I missed a friends wedding today, I'm so bummed. I missed the shower because I was sick. ERRRR. I hope I get to see picutres.
Well, great. I just found out my best friend's brother is in the hospital, just up the street. They don't know if it's his heart, kidney stones, gall bladder....I'm hoping it's kidney stones, that's way easier than the heart. I'm not supposed to go to the hospital becasue of my ex but if my friend's daughter needs me, I'll go any way. I don't really care.
So I guess I'll go shower just in case, yes, it's 6:45 and I haven't showered yet. No smart elick remarks!!!:) Bye
Thursday, September 21, 2006
not a fun night
Well here we are again. We have been talking about Kelly's job possibilities...meaning places he might apply, what that would mean in terms of where we live, what if he was gone a lot....
I keep telling him it doesn't matter because I'm alright. No more getting sick, at least not badly.
So about 2 am, I go to bed. Get out of chair, walk to bed room, lay down (lie down?), start gurggling, run to the bathroom and bleed for quite a while. After a few minutes, seemed like a lot of minutes, Kelly came in, got my 02 and my water. I kept telling myself not to panic. It was not the same as the other, I could still breathe even though there was blood, I was not going to pass out, I was going to be fine. When Kelly came in I just shook my head yes. He put his hand on my back and I knew he was feeling to see how bad it was. As it slowed down, I just sat in the front room for a while, was afraid to lie down. Kelly slept on the couch. Then I went to the bedroom and sat up reading. Finally, I don't know when, I started to slowly inch my way down and got to go to sleep.
It is such bad timing, I didn't want Kelly to worry about me when looking for a job. I want him to do what is best for his career, not what is best when he's worried about me. This is so frustrating.
I had a dentist appt this morning. I didn't go, didn't call, I don't care. I have to go back, my teeth are a mess! But I was afraid of how they lie you down so far that you feel like you're on your head. All I needed was to bleed at the dentist office. Had other things to do today, but I'm just taking it easy. A little picking up, I need to run a few errands, but mostly sitting pretty still.
As Kelly put it, just another day in the life of a CF'er.
I keep telling him it doesn't matter because I'm alright. No more getting sick, at least not badly.
So about 2 am, I go to bed. Get out of chair, walk to bed room, lay down (lie down?), start gurggling, run to the bathroom and bleed for quite a while. After a few minutes, seemed like a lot of minutes, Kelly came in, got my 02 and my water. I kept telling myself not to panic. It was not the same as the other, I could still breathe even though there was blood, I was not going to pass out, I was going to be fine. When Kelly came in I just shook my head yes. He put his hand on my back and I knew he was feeling to see how bad it was. As it slowed down, I just sat in the front room for a while, was afraid to lie down. Kelly slept on the couch. Then I went to the bedroom and sat up reading. Finally, I don't know when, I started to slowly inch my way down and got to go to sleep.
It is such bad timing, I didn't want Kelly to worry about me when looking for a job. I want him to do what is best for his career, not what is best when he's worried about me. This is so frustrating.
I had a dentist appt this morning. I didn't go, didn't call, I don't care. I have to go back, my teeth are a mess! But I was afraid of how they lie you down so far that you feel like you're on your head. All I needed was to bleed at the dentist office. Had other things to do today, but I'm just taking it easy. A little picking up, I need to run a few errands, but mostly sitting pretty still.
As Kelly put it, just another day in the life of a CF'er.
Tuesday, September 19, 2006
My little world
Well, tomorrow was supposed to be cousin lunch. I've been working on the yard for two weeks, I've cleaned carpets and windows, (only 2) and I've cleaned house. But now there is no lunch!! Some people are sick, some have other appointments or engagements. We're going to try again next Wednesday. So, I have to watch for errant weeds for another week? I went out tonite and threatened the front yard that if weeds grew I'd just let everything die. I think the yard knew I was bluffing! Nothing like the motivation to get off my tush and keep the house clean! I think we should keep postponing for a few more weeks. I'd really get things done! I may just go ahead and make that desert tonite anyway, and eat it all myself. yummm
Kelly is doing better. He has resigned himself to the new position. He'll keep looking for new job opportunities, but until that happens he'll do the best he can with the new job. My sister brought over some books for Kelly to have on the matrix system and Kelly is learning as much as he can about it. He's a better man than I am. I'd be sulking still.
Saw Lynn last night. She and Kelly and I went out to eat and she helped me figure out how to put thread on a bobbin. It looks so easy after she did it. She just had her hair done yesterday. Man it looked so pretty. I wish I had her hair. I wouldn't know what to do with more than my six hairs. She should be on some shampoo commercial.
Other than that not much going on. I have a dentist appt on Thursday, my nails on Friday and my hair on Saturday. I'll be a new woman. Hope two days in a row of breathing chemicals doesn't cause an adverse reaction!
Oh, I also am participating in a Leaf Pals group. A woman I know is a teacher for a 3rd grade class. She does a leaf project each fall where the kids are hooked up with an adult pen pal who tells them about their state and sends leaves for the entire class. I don't know what they do with the leaves but I think it helps them share about their project. I have to find 32 leaves, preferably after they turn colors (yea right) and press them, huh? and then send them along with other goodies such as maps and info to the child. I'll also get letters from the child telling me about them. It should be fun. If any of you have great tree leaves and know the name of the tree let me know! I don't know the names of the trees on our street. And ours don't really turn colors, they more likely just die. I will have till the end of October to send them out. Before that will be letters and the other stuff I send. Maybe I'll go the the mountains and get pine needles too. The class is in Arizona, what kinds of stuff don't they have in Arizona that I could send?
I'll take all suggestions. I want my kid to have the coolest project!
So, I guess that's it. Bye
Kelly is doing better. He has resigned himself to the new position. He'll keep looking for new job opportunities, but until that happens he'll do the best he can with the new job. My sister brought over some books for Kelly to have on the matrix system and Kelly is learning as much as he can about it. He's a better man than I am. I'd be sulking still.
Saw Lynn last night. She and Kelly and I went out to eat and she helped me figure out how to put thread on a bobbin. It looks so easy after she did it. She just had her hair done yesterday. Man it looked so pretty. I wish I had her hair. I wouldn't know what to do with more than my six hairs. She should be on some shampoo commercial.
Other than that not much going on. I have a dentist appt on Thursday, my nails on Friday and my hair on Saturday. I'll be a new woman. Hope two days in a row of breathing chemicals doesn't cause an adverse reaction!
Oh, I also am participating in a Leaf Pals group. A woman I know is a teacher for a 3rd grade class. She does a leaf project each fall where the kids are hooked up with an adult pen pal who tells them about their state and sends leaves for the entire class. I don't know what they do with the leaves but I think it helps them share about their project. I have to find 32 leaves, preferably after they turn colors (yea right) and press them, huh? and then send them along with other goodies such as maps and info to the child. I'll also get letters from the child telling me about them. It should be fun. If any of you have great tree leaves and know the name of the tree let me know! I don't know the names of the trees on our street. And ours don't really turn colors, they more likely just die. I will have till the end of October to send them out. Before that will be letters and the other stuff I send. Maybe I'll go the the mountains and get pine needles too. The class is in Arizona, what kinds of stuff don't they have in Arizona that I could send?
I'll take all suggestions. I want my kid to have the coolest project!
So, I guess that's it. Bye
Thursday, September 14, 2006
pissy mood
It's been a really sucky day. Two doc appts, one painful. Seems like a day where everything you touch turns to crud. I seem to do that alot, must be me. I even managed to lose an entire blog entry. Correct spelling errors...hit...not delete...shoot.... and it had the best comment ever from my #1 fan. Maybe some day he'll give me a comment again.
Still no word from Nissan. So much for the "we'll fix it in 24 hours". Still no word from my perscription insurance. I sent in the perscription over 5 weeks ago. I keep calling. I keep having everyone tell me it's not acceptable that they don't know what the problem is. On Tuesday I spoke to a supervisor, who called back later that night and said the order was to be expidited...yea right. I'm supposed to start that medication tomorrow. As I said in my missing blog, of how I do 28 days study drug, then 28 days off. Well, tomorrow starts my 28 days off, in which I do another drug instead. Except, no drug. I'm so tired of this. We started this new great insurance on July 1st. Already they've changed 2 perscriptions supposedly with my doctors approval, my doc's say they've never heard from them, they had a delay of my Pulmozyme, and now they can't seem to send this. Of course both of the delays are the very expensive drugs. Pulmozyme is $1600 a month and this drug, colymycin is about $3500 a month. I suppose they think I'll give up. Wrong.
So that's it for me. I'm going to bed. Tomorrow has to be better or I'm crawling into bed after the doctor and giving up.
\
Still no word from Nissan. So much for the "we'll fix it in 24 hours". Still no word from my perscription insurance. I sent in the perscription over 5 weeks ago. I keep calling. I keep having everyone tell me it's not acceptable that they don't know what the problem is. On Tuesday I spoke to a supervisor, who called back later that night and said the order was to be expidited...yea right. I'm supposed to start that medication tomorrow. As I said in my missing blog, of how I do 28 days study drug, then 28 days off. Well, tomorrow starts my 28 days off, in which I do another drug instead. Except, no drug. I'm so tired of this. We started this new great insurance on July 1st. Already they've changed 2 perscriptions supposedly with my doctors approval, my doc's say they've never heard from them, they had a delay of my Pulmozyme, and now they can't seem to send this. Of course both of the delays are the very expensive drugs. Pulmozyme is $1600 a month and this drug, colymycin is about $3500 a month. I suppose they think I'll give up. Wrong.
So that's it for me. I'm going to bed. Tomorrow has to be better or I'm crawling into bed after the doctor and giving up.
\
Tuesday, September 05, 2006
Nice and quiet
There is absolutely nothing going on. It is too darn hot to do anything out side. I'm hoping the weather man is right and it is in the 80's this weekend. 88 will feel so wonderful! My roses are calling me, but I can't get to them!
Wow, I really can't think of anything at all to say. Fine, guess I'll write when something is going on!
Hope everyone is having as quiet a time as we are, it's a good thing sometimes!
Wow, I really can't think of anything at all to say. Fine, guess I'll write when something is going on!
Hope everyone is having as quiet a time as we are, it's a good thing sometimes!
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